Deja vu....

Have you ever had the sense that you have been somewhere and done that before? Right now it feels like we are reliving the events of last week again only this time Alexandra is the prize that is staying just ever so sightly out of reach.

We have been hearing that the Alexandra would be ready for Wednesday discharge since Saturday/Sunday. Tonight was bath night and as typical we sported the daily weighing in festivities. Turns out that Alexandra has lost a bit of weight. If the doctors follow the "not losing weight the night before discharge" that they enforced with Annellice it looks like we are looking at yet another week of dashed hopes and likely that she will come home later rather than sooner. We are trying to stay positive despite the outcome fo the weigh-in but knoinw all to well how it affected us last week it is much like reopening a wound not yet healed.

Outside of the weigh-ins the girls are doing well over all. Annellice had her first well-baby visit with the pediatrician on Monday and she sported all the of a healthy baby. We will go back in 2 weeks to have blood work done to be sure that her iron levels are remaining in the desired ranges. Her feedings have already started to increase as well from max of 55mL to a max of 70mL if the mood strikes her. Alexandra had her feeding tube removed last week and has been on 100% bottle feeding. The theory behind this one is that its like teaching some kids how to swim you just have to throw them in the deep end to see how they respond... lucky for us she is responding well and has been maintaining her feedings well. The reflux for her is still an issue that we will likely have to monitor for some time until she grows out of it. On Monday Alexandra also has her Echocardiogram done to see if the small murmer detected at birth is still present. At this times the they estimate that the hole is now 2 different holes approximatley 2-3mm in size. One of the neonatologist docs feels that the reason for it being 2 small holes now is that the process of closing up entirely created a septum and that the murmur is likely going to go away as she gets bigger. Whenever she gets discharged we will be set up to meet with the cardio group approx 6weeks-3months out to measure the progress again.

We are almost there now, finish line in site... now if only it would quit moving on us things would be great!